Aicardi Syndrome Foundation receives funding from the REN (Rare Epilepsy Network)
Published on: March 15th, 2017, by Carrie Paup
A check in the amount of $8,000 was received from the REN (Rare Epilepsy Network). The Foundation would like to thank all of the Aicardi families who have taken the time to participate in the REN registry. This funding was made possible, because of family participation, as well as the hard work & dedication of Barbara Kroner. We would like to extend a sincere thank you to Mrs. Kroner, for her continued efforts on behalf of the Aicardi Syndrome Foundation.
If you would like to register your child in the REN registry, you can do so here: https://ren.rti.org/