Author Archive

Meghan Victoria Huber shares her journey…

June 19th, 2020 by webmaster

Meet Meghan Victoria Huber from New Hamburg, Ontario, Canada!

ASF features Abagayle Rose Muszynski (Abby Doo) from Colorado to share her journey…

Epilepsy Medication/Treatment Updates

February 29th, 2020 by webmaster

Medication and Treatment updates on Sabril® (Vigabatrin), Epidiolex (Cannabidiol), Valtoco® (Diazepam nasal spray), Nayzilam® (midazolam) and SenTiva Vagal Nerve Stimulator (VNS)

2016 Conference in Colorado Springs

July 2nd, 2015 by webmaster

Join us for the 2016 Aicardi Conference in Colorado Springs next year! Thank you for everyone who voted!

Meet Margaret Storey

February 25th, 2015 by webmaster

Congratulations to Aicardi mom, Margaret Storey, who received the Hero Award for Inspirational Commitment from the Epilepsy Foundation of Greater Chicago at their annual gala on February 21.

Please have your family join the REN Registry as it is patient-driven & patient-centered! Participation is the key to make this successful and useful for all families!

A letter of THANKS

June 2nd, 2014 by webmaster

The Aicardi Syndrome Foundation is incredibly grateful for the research and commitment Dr. Ignatia B. Van den Veyver and her team continue to provide.

Aicardi Foundation Receives Grant

March 3rd, 2014 by webmaster

A $5,000 Grant was received from the Greater Milwaukee Foundation Board.