Author Archive
Meghan Victoria Huber shares her journey…
June 19th, 2020 by webmaster
Meet Meghan Victoria Huber from New Hamburg, Ontario, Canada!
Abagayle Rose Muszynski (Abby Doo) shares her journey…
February 29th, 2020 by webmaster
ASF features Abagayle Rose Muszynski (Abby Doo) from Colorado to share her journey…
Epilepsy Medication/Treatment Updates
February 29th, 2020 by webmaster
Medication and Treatment updates on Sabril® (Vigabatrin), Epidiolex (Cannabidiol), Valtoco® (Diazepam nasal spray), Nayzilam® (midazolam) and SenTiva Vagal Nerve Stimulator (VNS)
2016 Conference in Colorado Springs
July 2nd, 2015 by webmaster
Join us for the 2016 Aicardi Conference in Colorado Springs next year! Thank you for everyone who voted!
Meet Margaret Storey
February 25th, 2015 by webmaster
Congratulations to Aicardi mom, Margaret Storey, who received the Hero Award for Inspirational Commitment from the Epilepsy Foundation of Greater Chicago at their annual gala on February 21.
Rare Epilepsy Network (REN) Registry is Now OPEN for Enrollment
October 24th, 2014 by webmaster
Please have your family join the REN Registry as it is patient-driven & patient-centered! Participation is the key to make this successful and useful for all families!
A letter of THANKS
June 2nd, 2014 by webmaster
The Aicardi Syndrome Foundation is incredibly grateful for the research and commitment Dr. Ignatia B. Van den Veyver and her team continue to provide.
Aicardi Foundation Receives Grant
March 3rd, 2014 by webmaster
A $5,000 Grant was received from the Greater Milwaukee Foundation Board.