Meghan Victoria Huber shares her journey…
Meet Meghan Victoria Huber from New Hamburg, Ontario, Canada!
Sadie McCann Fund: Grants for Aicardi Families
Families can apply for $500 grant from the Sadie McCann Fund in response to the COVID-19 Pandemic.
Letter from Dr. Van den Veyver: 2020 AS Conference Cancellation
Please read a letter from Dr. Van den Veyver regarding the cancellation of our 2020 Conference.
Abagayle Rose Muszynski (Abby Doo) shares her journey…
ASF features Abagayle Rose Muszynski (Abby Doo) from Colorado to share her journey…
Epilepsy Medication/Treatment Updates
Medication and Treatment updates on Sabril® (Vigabatrin), Epidiolex (Cannabidiol), Valtoco® (Diazepam nasal spray), Nayzilam® (midazolam) and SenTiva Vagal Nerve Stimulator (VNS)
2020 Family Conference Cancelled
Out of an abundance of caution, the AS Foundation has cancelled the Las Vegas conference 2020.
Sadie McCann Fund: Grants for children with Aicardi Syndrome
Only a few more weeks until the next grant deadline for The Sadie McCann Fund. www.sadiemccannfund.org Grants of up to $1,000 are available for any family whose child has been diagnosed with Aicardi Syndrome. Applicant(s) must demonstrate financial need (see website) and the grant funds must be used for the direct benefit of the affected […]
2018 Aicardi Syndrome Family Conference Announced
2018 AICARDI SYNDROME FAMILY CONFERENCE Thursday, July 12, 2018 until Sunday, July 15, 2018 in Bloomington, MN Double Tree by Hilton Bloomington Minneapolis South 7800 Normandale Blvd, Bloomington, Minnesota 55439 More details about the conference will be posted here soon. We look forward to seeing everyone next summer! If you have questions about the […]