Posted: September 7th, 2022, by: Carrie Paup
Category: In The News
Event being held on October 22, 2022 More details coming soon! To make a tax-deductible donation to the Foundation, please call the Jupiter Law Center at 561-744-4600 or mail a check payable to Aicardi Syndrome Foundation, care of Jupiter Law Center, 1102 W. Indiantown Road, Suite 7, Jupiter, FL, 33458-6813.
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Posted: June 19th, 2020, by: webmaster
Category: In The News
Meet Meghan Victoria Huber from New Hamburg, Ontario, Canada!
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Posted: March 20th, 2020, by: Carrie Paup
Category: In The News
Families can apply for $500 grant from the Sadie McCann Fund in response to the COVID-19 Pandemic.
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Posted: February 29th, 2020, by: webmaster
Category: In The News
ASF features Abagayle Rose Muszynski (Abby Doo) from Colorado to share her journey…
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Posted: February 29th, 2020, by: webmaster
Category: In The News
Medication and Treatment updates on Sabril® (Vigabatrin), Epidiolex (Cannabidiol), Valtoco® (Diazepam nasal spray), Nayzilam® (midazolam) and SenTiva Vagal Nerve Stimulator (VNS)
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Posted: February 28th, 2018, by: Carrie Paup
Category: In The News
Out of an abundance of caution, the AS Foundation has cancelled the Las Vegas conference 2020.
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Posted: August 22nd, 2017, by: Carrie Paup
Category: In The News
Only a few more weeks until the next grant deadline for The Sadie McCann Fund. www.sadiemccannfund.org Grants of up to $1,000 are available for any family whose child has been diagnosed with Aicardi Syndrome. Applicant(s) must demonstrate financial need (see website) and the grant funds must be used for the direct benefit of the affected […]
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Posted: August 1st, 2017, by: Carrie Paup
Category: In The News
2018 AICARDI SYNDROME FAMILY CONFERENCE Thursday, July 12, 2018 until Sunday, July 15, 2018 in Bloomington, MN Double Tree by Hilton Bloomington Minneapolis South 7800 Normandale Blvd, Bloomington, Minnesota 55439 More details about the conference will be posted here soon. We look forward to seeing everyone next summer! If you have questions about the […]
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