Aicardi News: Winter Edition (Vol 2, Issue 3) with updates from President Adam Gumson, board changes, new committees, and fundraising highlights. Downloadable Version: Aicardi News Winter Edition Volume 2
Aicardi News Winter Edition Volume 2: Issue 3 Read More »
Aicardi Awareness Day honors Dr. Jean Aicardi and unites families worldwide. Learn about Aicardi Syndrome, Emmy’s story, advocacy, and how to get involved.
Aicardi News: Special Edition Read More »
This NBC News feature follows the Lazoen family, whose daughter lives with Aicardi syndrome — a rare neurological disorder. Despite her urgent medical needs, nearly every insurance claim gets contested, leaving the family to shoulder thousands in monthly costs. The story highlights the struggles many families face trying to get coverage for essential care. Struggling
Aicardi Families in the News – Emmy Lazoen Read More »
The Fall 2025 Aicardi Newsletter features a message from President Adam Gumson on how conference sites are chosen and the importance of volunteers. It highlights Jenna’s Jig 2025, a 1950s-themed fundraiser that raised over $24,000, and shares the Bond family’s inspiring story of attending their first Aicardi Family Conference.
Aicardi News Fall Edition Volume 2: Issue 1 Read More »
Fresh off our most-attended conference ever, President Adam Gumson reflects on what made it so meaningful—and how we can all play a part in ASF’s next chapter.
A Post-Conference Message from President Adam Gumson Read More »
