Aicardi News Spring Quarter Volume 1: Issue 3 This edition of the Aicardi News newsletter shares a message from President Adam Gumson with tidbits about the conference, a Day in the Life spotlight on Victoria Mahusky, and the announcement of an upcoming Aicardi Shirt fundraiser. Downloadable Version: Aicardi News – Spring 2025 Newsletter

Aicardi News Winter Quarter Volume 1: Issue 2

This edition of the Aicardi News newsletter, shares a message from President Adam Gumson with information about the Aicardi Conference and the important role that the Conference plays in the lives of the Aicardi families.

Hello Aicardi families! I am the new president of the Aicardi Syndrome Foundation (“ASF”) and the first thing I want to do in my official capacity

We are very excited to announce that the 2025 Aicardi Syndrome Family Conference will be held at the Franklin Marriott Cool Springs in Franklin, TN on July 3, 2025 – July 6, 2025

Katie Seeright and her daughter Adeline share how they navigate the challenges of Aicardi Syndrome. This rare genetic disorder has brought them unexpected hardships, but with the help of their community, they’ve found a sense of home and hope. Learn more about their journey and how awareness can foster inclusivity and support for affected families. Read