This NBC News feature follows the Lazoen family, whose daughter lives with Aicardi syndrome — a rare neurological disorder. Despite her urgent medical needs, nearly every insurance claim gets contested, leaving the family to shoulder thousands in monthly costs. The story highlights the struggles many families face trying to get coverage for essential care. Struggling […]
Aicardi Families in the News – Emmy Lazoen Read More »
The Fall 2025 Aicardi Newsletter features a message from President Adam Gumson on how conference sites are chosen and the importance of volunteers. It highlights Jenna’s Jig 2025, a 1950s-themed fundraiser that raised over $24,000, and shares the Bond family’s inspiring story of attending their first Aicardi Family Conference.
Aicardi News Fall Edition Volume 2: Issue 1 Read More »
Fresh off our most-attended conference ever, President Adam Gumson reflects on what made it so meaningful—and how we can all play a part in ASF’s next chapter.
A Post-Conference Message from President Adam Gumson Read More »
The Aicardi News newsletter, Summer Quarter Vol 1: Issue 4, with a message from President Adam Gumson sharing the latest on the Aicardi Syndrome Family Conference in Franklin, Tennessee, plus heartwarming community stories, fundraising highlights, and a spotlight on Helen Cahill’s inspiring journey. Join us in celebrating strength, support, and connection
Aicardi News Summer Quarter Volume 1: Issue 4 Read More »
Aicardi News Spring Quarter Volume 1: Issue 3 This edition of the Aicardi News newsletter shares a message from President Adam Gumson with tidbits about the conference, a Day in the Life spotlight on Victoria Mahusky, and the announcement of an upcoming Aicardi Shirt fundraiser. Downloadable Version: Aicardi News – Spring 2025 Newsletter
Aicardi News Spring Quarter Volume 1: Issue 3 Read More »
