Meet Meghan Victoria Huber from New Hamburg, Ontario, Canada!
Families can apply for $500 grant from the Sadie McCann Fund in response to the COVID-19 Pandemic.
Please read a letter from Dr. Van den Veyver regarding the cancellation of our 2020 Conference.
ASF features Abagayle Rose Muszynski (Abby Doo) from Colorado to share her journey…
Medication and Treatment updates on Sabril® (Vigabatrin), Epidiolex (Cannabidiol), Valtoco® (Diazepam nasal spray), Nayzilam® (midazolam) and SenTiva Vagal Nerve Stimulator (VNS)
Out of an abundance of caution, the AS Foundation has cancelled the Las Vegas conference 2020.
Only a few more weeks until the next grant deadline for The Sadie McCann Fund. www.sadiemccannfund.org Grants of up to $1,000 are available for any family whose child has been diagnosed with Aicardi Syndrome. Applicant(s) must demonstrate financial need (see website) and the grant funds must be used for the direct benefit of the affected […]
2018 AICARDI SYNDROME FAMILY CONFERENCE Thursday, July 12, 2018 until Sunday, July 15, 2018 in Bloomington, MN Double Tree by Hilton Bloomington Minneapolis South 7800 Normandale Blvd, Bloomington, Minnesota 55439 More details about the conference will be posted here soon. We look forward to seeing everyone next summer! If you have questions about the […]