Abagayle Rose Muszynski (Abby Doo) shares her journey…
ASF features Abagayle Rose Muszynski (Abby Doo) from Colorado to share her journey…
Abagayle Rose Muszynski (Abby Doo) shares her journey… Read More »
ASF features Abagayle Rose Muszynski (Abby Doo) from Colorado to share her journey…
Abagayle Rose Muszynski (Abby Doo) shares her journey… Read More »
Medication and Treatment updates on Sabril® (Vigabatrin), Epidiolex (Cannabidiol), Valtoco® (Diazepam nasal spray), Nayzilam® (midazolam) and SenTiva Vagal Nerve Stimulator (VNS)
Epilepsy Medication/Treatment Updates Read More »
Only a few more weeks until the next grant deadline for The Sadie McCann Fund. www.sadiemccannfund.org Grants of up to $1,000 are available for any family whose child has been diagnosed with Aicardi Syndrome. Applicant(s) must demonstrate financial need (see website) and the grant funds must be used for the direct benefit of the affected
Sadie McCann Fund: Grants for children with Aicardi Syndrome Read More »
2018 AICARDI SYNDROME FAMILY CONFERENCE Thursday, July 12, 2018 until Sunday, July 15, 2018 in Bloomington, MN Double Tree by Hilton Bloomington Minneapolis South 7800 Normandale Blvd, Bloomington, Minnesota 55439 More details about the conference will be posted here soon. We look forward to seeing everyone next summer! If you have questions about the
2018 Aicardi Syndrome Family Conference Announced Read More »
Amazon has a great program that will donate a percent of your Amazon.com purchases to the Aicardi Syndrome Foundation, at no extra cost to you! In order to sign up for this program, you can follow the simple instructions listed here: https://www.amazon.com/gp/help/customer/display.html?nodeId=201365360
Amazon Smile Program: Sign up today to benefit the Aicardi Foundation Read More »