Aicardi News: Special Edition
Aicardi Awareness Day honors Dr. Jean Aicardi and unites families worldwide. Learn about Aicardi Syndrome, Emmy’s story, advocacy, and how to get involved.
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In The News
Aicardi Families in the News – Emmy Lazoen
This NBC News feature follows the Lazoen family, whose daughter lives with Aicardi syndrome — a rare neurological disorder. Despite her urgent medical needs, nearly every insurance claim gets contested, leaving the family to shoulder thousands in monthly costs. The story highlights the struggles many families face trying to get coverage for essential care. Struggling
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Aicardi News Fall Edition Volume 2: Issue 1
The Fall 2025 Aicardi Newsletter features a message from President Adam Gumson on how conference sites are chosen and the importance of volunteers. It highlights Jenna’s Jig 2025, a 1950s-themed fundraiser that raised over $24,000, and shares the Bond family’s inspiring story of attending their first Aicardi Family Conference.
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A Post-Conference Message from President Adam Gumson
Fresh off our most-attended conference ever, President Adam Gumson reflects on what made it so meaningful—and how we can all play a part in ASF’s next chapter.
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Aicardi News Summer Quarter Volume 1: Issue 4
The Aicardi News newsletter, Summer Quarter Vol 1: Issue 4, with a message from President Adam Gumson sharing the latest on the Aicardi Syndrome Family Conference in Franklin, Tennessee, plus heartwarming community stories, fundraising highlights, and a spotlight on Helen Cahill’s inspiring journey. Join us in celebrating strength, support, and connection
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