The Research team at Texas Children’s Hospital and Baylor College of Medicine is conducting research to understand the cause of Aicardi syndrome. More details can be found below, or the PDF can be downloaded.
Opportunity to participate in research study on Aicardi Syndrome Read More »
Aicardi News: Spring Edition (Vol 2, Issue 4) with updates from President Adam Gumson, A day in the Life of Jenny Barada, and photos of the Aicardi Syndrome Foundation Board Downloadable Version: Aicardi News Spring Edition Volume 2, Issue 4 Downloadable Version: Aicardi News Spring Edition Volume 2, Issue 4
Aicardi News Spring Edition Volume 2: Issue 4 Read More »
Aicardi News: Winter Edition (Vol 2, Issue 3) with updates from President Adam Gumson, board changes, new committees, and fundraising highlights. Downloadable Version: Aicardi News Winter Edition Volume 2
Aicardi News Winter Edition Volume 2: Issue 3 Read More »
Aicardi Awareness Day honors Dr. Jean Aicardi and unites families worldwide. Learn about Aicardi Syndrome, Emmy’s story, advocacy, and how to get involved.
Aicardi News: Special Edition Read More »
This NBC News feature follows the Lazoen family, whose daughter lives with Aicardi syndrome — a rare neurological disorder. Despite her urgent medical needs, nearly every insurance claim gets contested, leaving the family to shoulder thousands in monthly costs. The story highlights the struggles many families face trying to get coverage for essential care. Struggling
Aicardi Families in the News – Emmy Lazoen Read More »
