The Aicardi Syndrome Foundation’s Fall 2026 newsletter shares “Breaking News”: Aicardi Syndrome is now on the SSA’s fast-track disability list. Plus, spend “A Day in the Life” with Joanna Hodge and learn about the updated 2008 U.S. prevalence study. Click here to download the newsletter as a PDF: Aicardi News Fall Edition-Vol3 Issue1.pdf
Aicardi News Fall Edition Vol 3: Issue 1 Read More »
Click here to download this Newsletter as a PDF
Special Summer Newsletter – Conference Information – Volume 2: Issue 6 Read More »
Aicardi News: Summer Edition (Vol 2, Issue 5) with updates from President Adam Gumson, 2027 Family Conference details for St. Louis, plus an Aicardi Highlight featuring Laura Lechuga.
Aicardi News Summer Edition Volume 2: Issue 5 Read More »
The Research team at Texas Children’s Hospital and Baylor College of Medicine is conducting research to understand the cause of Aicardi syndrome. More details can be found below, or the PDF can be downloaded.
Opportunity to participate in research study on Aicardi Syndrome Read More »
Aicardi News: Spring Edition (Vol 2, Issue 4) with updates from President Adam Gumson, A day in the Life of Jenny Barada, and photos of the Aicardi Syndrome Foundation Board Downloadable Version: Aicardi News Spring Edition Volume 2, Issue 4 Downloadable Version: Aicardi News Spring Edition Volume 2, Issue 4
Aicardi News Spring Edition Volume 2: Issue 4 Read More »
