Meet Margaret Storey
Congratulations to Aicardi mom, Margaret Storey, who received the Hero Award for Inspirational Commitment from the Epilepsy Foundation of Greater Chicago at their annual gala on February 21.
Meet Margaret Storey Read More »
In The News
Rare Epilepsy Network (REN) Registry is Now OPEN for Enrollment
Please have your family join the REN Registry as it is patient-driven & patient-centered! Participation is the key to make this successful and useful for all families!
Rare Epilepsy Network (REN) Registry is Now OPEN for Enrollment Read More »
A letter of THANKS
The Aicardi Syndrome Foundation is incredibly grateful for the research and commitment Dr. Ignatia B. Van den Veyver and her team continue to provide.
A letter of THANKS Read More »
Aicardi Foundation Receives Grant
A $5,000 Grant was received from the Greater Milwaukee Foundation Board.
Aicardi Foundation Receives Grant Read More »
PCORI Award
The Aicardi Syndrome Foundation is one of 10 organizations representing a rare epilepsy to receive funding from the Epilepsy Foundation through a contract from PCORI.