Save the Date - 2027 Conference will be held in St. Louis, MO on July 8-10, 2027, with an optional welcome family event on Wednesday, July 7th.
Board of Directors
Our volunteer Board brings lived experience, professional expertise, and a shared commitment to supporting families impacted by Aicardi Syndrome. They provide vision, accountability, and guidance so every program, dollar, and decision moves us closer to funding research and conferences, raising awareness of Aicardi Syndrome, improving the lives of Aicardi children and their families and providing support and comfort to those families who have lost an Aicardi angel.