Board of Directors

Our volunteer Board brings lived experience, professional expertise, and a shared commitment to supporting families impacted by Aicardi Syndrome.  They provide vision, accountability, and guidance so every program, dollar, and decision moves us closer to funding research and conferences, raising awareness of Aicardi Syndrome, improving the lives of Aicardi children and their families and providing support and comfort to those families who have lost an Aicardi angel. 

Adam Gumson

President

Carrie Paup

Vice President

Ronda Parsons

Secretary

Lissa Gumson

Treasurer

Linda Tveita

Member

Terry Tveita

Member

Ben Wells Jr.

Member

Justin Tolman

Member

Al Meo

Founder

Cindy Meo

Founder

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