The Aicardi Syndrome Foundation
Through the Foundation’s support and family involvement, we can make a difference in improving the lives of children with Aicardi syndrome. Please visit www.OurAicardiLife.org to meet some of children and read their journeys about living with Aicardi syndrome today.
Our Stories
Register your child and connect with other families living with Aicardi.
In Loving Memory
Tributes to those no longer with us
In the News...
Aicardi News Spring Quarter Volume 1: Issue 3 This edition of the Aicardi News newsletter shares a message from President Adam Gumson with tidbits about the conference, a Day in the Life spotlight on Victoria Mahusky, and the announcement of an upcoming Aicardi Shirt fundraiser. Downloadable Version: Aicardi News – Spring 2025 Newsletter
Aicardi News Winter Quarter Volume 1: Issue 2 This edition of the Aicardi News newsletter, shares a message from President Adam Gumson with information about the Aicardi Conference and the important role that the Conference plays in the lives of the Aicardi families.
Hello Aicardi families! I am the new president of the Aicardi Syndrome Foundation ("ASF") and the first thing I want to do in my official capacity