The Aicardi Syndrome Foundation
Through the Foundation’s support and family involvement, we can make a difference in improving the lives of children with Aicardi syndrome. Please visit www.OurAicardiLife.org to meet some of children and read their journeys about living with Aicardi syndrome today.
Our Stories
Register your child and connect with other families living with Aicardi.
In Loving Memory
Tributes to those no longer with us
In the News...
Aicardi News: Summer Edition (Vol 2, Issue 5) with updates from President Adam Gumson, 2027 Family Conference details for St. Louis, plus an Aicardi Highlight featuring Laura Lechuga.
The Research team at Texas Children’s Hospital and Baylor College of Medicine is conducting research to understand the cause of Aicardi syndrome. More details can be found below, or the PDF can be downloaded.
Aicardi News: Spring Edition (Vol 2, Issue 4) with updates from President Adam Gumson, A day in the Life of Jenny Barada, and photos of the Aicardi Syndrome Foundation Board Downloadable Version: Aicardi News Spring Edition Volume 2, Issue 4 Downloadable Version: Aicardi News Spring Edition Volume 2, Issue 4