is a volunteer-based, non-profit organization dedicated to raising research funds and awareness for Aicardi syndrome. Registering your child with the Aicardi Syndrome Foundation allows your family to receive the latest research news, announcements and professional information as quickly as possible, as well as learning about ongoing research studies that your child may qualify for.

Through the Foundation’s support and family involvement, we can make a difference in improving the lives of children with Aicardi syndrome. Please visit www.OurAicardiLife.org to meet some of children and read their journeys about living with Aicardi syndrome today.