The Aicardi Syndrome Foundation
Through the Foundation’s support and family involvement, we can make a difference in improving the lives of children with Aicardi syndrome. Please visit www.OurAicardiLife.org to meet some of children and read their journeys about living with Aicardi syndrome today.
Our Stories
Register your child and connect with other families living with Aicardi.
In Loving Memory
Tributes to those no longer with us
In the News...
Hello Aicardi families! I am the new president of the Aicardi Syndrome Foundation ("ASF") and the first thing I want to do in my official capacity
We are very excited to announce that the 2025 Aicardi Syndrome Family Conference will be held at the Franklin Marriott Cool Springs in Franklin, TN on July 3, 2025 - July 6, 2025
Katie Seeright and her daughter Adeline share how they navigate the challenges of Aicardi Syndrome. This rare genetic disorder has brought them unexpected hardships, but with the help of their community, they’ve found a sense of home and hope. Learn more about their journey and how awareness can foster inclusivity and support for affected families. Read […]