The Aicardi Syndrome Foundation
is a volunteer-based, non-profit organization dedicated to raising research funds and awareness for Aicardi syndrome. Registering your child with the Aicardi Syndrome Foundation allows your family to receive the latest research news, announcements and professional information as quickly as possible, as well as learning about ongoing research studies that your child may qualify for.
Through the Foundation’s support and family involvement, we can make a difference in improving the lives of children with Aicardi syndrome. Please visit www.OurAicardiLife.org to meet some of children and read their journeys about living with Aicardi syndrome today.
Through the Foundation’s support and family involvement, we can make a difference in improving the lives of children with Aicardi syndrome. Please visit www.OurAicardiLife.org to meet some of children and read their journeys about living with Aicardi syndrome today.
Our Stories
Register your child and connect with other families living with Aicardi.
In Loving Memory
Tributes to those no longer with us
In the News...
Aicardi News Winter Quarter Volume 1: Issue 2 This edition of the Aicardi News newsletter, shares a message from President Adam Gumson with information about the Aicardi Conference and the important role that the Conference plays in the lives of the Aicardi families.
Hello Aicardi families! I am the new president of the Aicardi Syndrome Foundation ("ASF") and the first thing I want to do in my official capacity
We are very excited to announce that the 2025 Aicardi Syndrome Family Conference will be held at the Franklin Marriott Cool Springs in Franklin, TN on July 3, 2025 - July 6, 2025