Author name: michelleself

Hello Aicardi families! I am the new president of the Aicardi Syndrome Foundation (“ASF”) and the first thing I want to do in my official capacity

We are very excited to announce that the 2025 Aicardi Syndrome Family Conference will be held at the Franklin Marriott Cool Springs in Franklin, TN on July 3, 2025 – July 6, 2025

Katie Seeright and her daughter Adeline share how they navigate the challenges of Aicardi Syndrome. This rare genetic disorder has brought them unexpected hardships, but with the help of their community, they’ve found a sense of home and hope. Learn more about their journey and how awareness can foster inclusivity and support for affected families. Read